I write as someone married to a man diagnosed with ALS. Regardless of whether or not it ought to, that truth has altered my perception of, and my approach to, life. The above photo was taken last month, just after I completed my first-ever marathon, an insanely challenging endeavor which happens to be a particularly fitting metaphor for the ALS adventure.

We are entering our fourth year with this strange diagnosis. Way back in 2019, Stan was given 2-4 years to live, so there is a certain weight we both carry as we turn the corner and peer into 2023, though the burdens are quite different for each of us. Whether you are the person living with ALS or you are that person’s person, the journey is confusing, frustrating, and exhausting–mentally, emotionally, and of course, physically.

Despite the fact we are over three years in, our road has been fairly smooth: Stan is still walking, talking, eating, and breathing unassisted, but there are invisible effects of the disease that impact daily life in very tangible ways. If you know, you know. If you don’t, I will attempt to share some of our experience–our testimony–as the Lord calls me to do so.

“Come to me, all who labor and are heavy laden, and I will give you rest. Take my yoke upon you, and learn from me, for I am gentle and lowly in heart, and you will find rest for your souls. For my yoke is easy, and my burden is light.”

Jesus the Christ, Matthew 11:28-30